Patient Advocacy
Boundless Impact Starts with Patients
We are forging a new era of psychiatry and guided by a recognition that patients deserve more than better. Our patient advocacy team is dedicated to building trusted relationships with advocacy organizations and patient communities to help ensure patient and caregiver needs and perspectives are integrated into the development of our medicines and programs.
Meet our patient advocacy partners
Many organizations provide information and support for people living with psychiatric and neurological disorders. Explore the organizations below to learn more and connect with helpful resources. This list does not imply endorsement by Definium Therapeutics or any organization listed.
Alliance for Patient Access (AfPA)
AfPA is a national nonprofit organization of policy-minded clinicians and patient advocates who champion patient-centered health care policy. In 2012, AfPA established the Institute for Patient Access, which sponsors policy research and educational programming to promote a deeper understanding of the benefits of the clinician-patient relationship in the provision of quality health care.
American Brain Coalition (ABC)
ABC is a nonprofit organization comprised of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations, clinicians, researchers, academia, industry, and government agencies. Together, they seek to advance the understanding of the functions of the brain and to reduce the burden of brain disorders through public education and advocacy.
American Foundation for Suicide Prevention (AFSP)
AFSP is dedicated to saving lives and bringing hope to those affected by suicide, including those who have experienced a loss. AFSP creates a culture that promotes mental health through public education and community programs, develops suicide prevention through research and advocacy, and provides support for those affected by suicide.
Depression and Bipolar Support Alliance (DBSA)
DBSA is the leading national organization focused on mood disorders, including depression and bipolar disorder. DBSA provides peer-led support, trusted resources, and wellness tools for individuals living with mood disorders—as well as for their family members, friends, parents, and caregivers.
Mental Health America (MHA)
MHA is the nation’s leading nonprofit dedicated to promoting the mental health and well-being of all people living in the U.S. With a network of MHA affiliates across the country, MHA works at both the national and local levels to advance this mission through public education, research, advocacy and public policy, and direct service. MHA’s work is informed, designed, and led by the lived experience of those most affected.
Rural Minds
Rural Minds is a nonprofit organization with the mission to serve as the informed voice for mental health in rural America and to provide mental health information and resources. Rural Minds is the only national 501(c)(3) nonprofit focused on advocating for rural mental health equity, promoting mental wellness, and providing educational content to confront rural mental health challenges and the stigma that surrounds mental illness for the 46 million people living in farming, ranching, and agriculture communities, small towns, and isolated areas across rural America.
Learn about clinical trials
Patient Resources
Visit clinicaltrials.gov to find clinical trials near you. This site is a database of privately and publicly funded clinical studies conducted around the world. Here you can find trials that are actively recruiting for different indications as well as the inclusion and exclusion criteria for different trials. You also have certain rights as a participant in a research study or clinical trial. See the Bill of Rights below for a list of these rights as well as links that provide additional information related to participant safety and research ethics.
- To have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research.
- To refuse to be in the study at all, and to stop participating at any time after you begin the study.
- To be told what the study is trying to find out, what will happen to you, and what you will be asked to do if you are in the study.
- To be told about the reasonably foreseeable risks of being in the study.
- To be told about the possible benefits of being in the study.
- To be told whether there are any costs associated with being in the study and whether you will be compensated for participating in the study.
- To be told who will have access to information collected about you, and how your confidentiality will be protected.
- To be told whom to contact with questions about the research, about research-related injury, and about your rights as a research subject.
- To be told about the other non-research treatment choices you have, if the study involves treatment or therapy.
- To be told where treatment is available should you have a research-related injury, and who will pay for research-related treatment.
Additional resources regarding the rights of research participants can be found at the following links:
Regulations to Protect Research Volunteers
Declaration of Helsinki
The Belmont Report
Inside Clinical Trials: Testing Medical Products in People
Suicide Prevention and Crisis Resources
If you or someone you know is experiencing a crisis or needs support and you’re in the U.S., you can call the 24/7 National Suicide Prevention Lifeline at 988, or contact the Crisis Text Line by texting 741-741, or visit the Suicide Prevention Lifeline website.
If you are outside of the U.S., crisis resources and hotlines can be found at findahelpline.com, where you can search for resources available in your location.
If you or someone you know is experiencing a medical, mental health, or other emergency, contact 911 or your region’s designated emergency number or proceed to your nearest emergency department.
Precise science.
Boundless impact.
For U.S. audiences only.